Connect
Information, Resources, Advocacy
Below are websites, Facebook pages or groups. Click here for Youtube channels or select my "Watch" page above.
Parent Facebook groups can provide a lot of information, tips, validation and solidarity, much needed at times when your child has a 'personality change' and no-one believes you! However, sometimes hearing others' distress and traumatic experiences can worsen your own distress, fear or sense of hopelessness. Please consider whether Parent Facebook groups are right for you at this time.
Web Facebook PANS Australia. PANS/PANDAS Parent Advocacy and Support Group
Facebook Parent group for the above
Web Facebook PANDAS/PANS Australia and New Zealand Advocac and Support Inc.
Facebook Parent group for the above.
Web Facebook ASPIRE (US). Extensive information, resources, advocacy for PANS/PANDAS.
Web Facebook PANDAS Network (US).
Web Facebook Molecular Labs (US). Molecular Labs. Autoimmunity testing for neuropsychiatric illness. Information about PANS.
Web Facebook PANDAS Physicians Network (PPN; US). Flowcharts, Diagnosis, Treatment, Seeing your first patient.
Facebook PANS/ PANDAS Therapists Collective. International Facebook Group connecting therapists
working with PANS clients
Facebook PANS/PANDAS Therapist Education Group. Facebook Group with info for therapists working with PANS clients
Facebook The Autoimmune Brain. Facebook Group for the book by David S Younger, MD. A five step plan for treating chronic pain, depression, anxiety, fatigue and attention disorders.