Videos
I will continue updating. Most recent recordings at the top.2022 Northwell Health Presents: Understanding the Spectrum of Childhood Encephalitis including PANDAS & PANS. February 2022.
SANE Sweden 2019 PANS Conference. Conference videos including definition, evidence, implications for treatment, supporting families, differential diagnosis, PANS in adults, biomarkers and diagnostics, parent perspective, links with other diagnoses, intravenous immunoglobulin treatment, and more. October 2019. See what I noticed: Instagram | Facebook
Linking intranasal group A Streptococcus infection to CNS complications. Journal of Clinical Investigation video.
"Pat Cleary and Dritan Agalliu discuss their collaboration to investigate the link between the generation of GAS-specific Th17 cells and CNS autoimmunity." December 2015.
Video content collections:
ASPIRE. Podcasts and Videos - lots and lots of resources!
Youtube Channel for ASPIRE (US). Extensive information, resources, advocacy for PANS/PANDAS
Youtube Channel for PANDAS Network (US). Resources and support for PANS/PANDAS/AE
Youtube Channel for PANS PANDAS UK Charity (UK). Awareness, support, education.
Youtube Channel for Molecular Labs (US). Molecular Labs. Autoimmunity testing for neuropsychiatric illness. Extensive information about PANS.
UA Health Sciences University of Arizona Health Sciences: Children's Postinfectious Autoimmune Encephalopathy Centre. Primary Care Physician Overview. Videos and resources for physicians.
Webinars
PANS/PANDAS Webinar for Occupational Therapists and other Allied Health Professionals. A$50. Australian OT Michelle Newby, PhD candidate. "This webinar will help you to understand PANS/ PANDAS, what the symptoms are and how the condition is diagnosed. It will also discuss the role of OT in supporting children with PANS/ PANDAS, with lots of practical tips and tricks along the way."
PANS: The Mystery Illness. A$65. Doctor Leila Masson (Paediatrician). "In this talk, Dr. Leila Masson discussed what PANS is (an acute change in behaviour and mood after an infection, often causing debilitating anxiety and OCD), how to figure out whether a child suffers from this, and how to treat PANS."
What therapists should know about PANS/PANDAS/AE. US$55. (USA) Dr Odelya Gertel Kraybill. Information and intervention plans for autoimmune encephalitis - inflammation of the brain - specifically, PANS.
Documentaries
Living with PANS and PANDAS (2020). "PANS PANDAS UK present this moving mini-documentary featuring the voices of parents with children affected by PANS or PANDAS. This is their story, their experience and we thank them for being so honest and candid."
Stolen Childhood (2019). An emotional documentary on families who have a misdiagnosed child, "...the impact of PANDAS, and the consequences of medical misdiagnosis."
My Kid is Not Crazy: a search for hope in the face of misdiagnosis- cinema release (2018). An emotional documentary of six families' journeys through a medical system happy to prescribe SSRIs but hesitant to prescribe antibiotics for potentially infection-induced symtpoms.